.... and we have more information. We hoped that this scans at St Mary's would confirm what the sonographers thought last Thursday. That Baby's palette is intact, as is his nose.
Sadly, that is not the case. He has a unilateral (one gap) cleft lip and palette. It is average in size and it does goes the full way up to his nostril and his nose is affected. His palette is damaged so feeding will be that little more complicated but the consultant is confident that all can be fixed with a minimum of two surgeries.
We are disappointed that it is as severe as it is, we had hoped that it would be only his lip, but now we really do have to consider speech difficulties, eating challenges and other hurdles too.
We are also very, very aware of the kindness of others, the pain and sadness that this brings. On the other hand we so many are excited to meet him and give cuddles. So form a queue... and be patient as June feels very far away.
Something to make you smile.
I picked Emily up form our childminder after our hospital appointment.
JA: we saw the baby dr today
E: Did he make my brother better?
JA: No, but when he is born.
E: What did he say?
JA: Well, your brother has a hole in his lip, but he also has a hole in his nose and mouth.
E: Mummy, there are holes everywhere! He is a holey baby!
JA: (Laughing) yes he really is!
E: But mummy, my baby brother is holey and Joel is holey, why am I not holey?
JA: I don't know Emily, we are glad you are not holey!
We are smiling, although we are hurting; we are laughing although we are weeping; we are praying and know that God is supporting us through people, friends and family and in silence too.
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